I'm not the only one living with
multiple sclerosis.
My sister Judy is, too, when she
picks up some groceries for me while
visiting from South Bend. So is my
neighbor Whitey, who collects my mail
and leaves it outside my door. So are
Rosalma and Maria, who help me
unload groceries from the back of my
van and bring them into the kitchen.
Sometimes my friends Sue and
Joanne bring lunch or carryout to work
or to my home when the weather is
cold and rainy and they don't want
me venturing outdoors.
When anyone gets ill, many others
are affected. No one lives with a disease
in a social or spiritual vacuum. Family,
friends and neighbors often rally
around those with chronic or mental
illness, and help according to their gifts.
They are following the Gospel mandate
to help their neighbor.
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A Myriad of Caregivers
People with health problems might
claim that they do not have a "caregiver,"
but the reality is that actually
they probably have several of them!
Blessed are those who love the others when they are sick
and unable to serve, as much as when they are healthy
and of service to them. Whether in sickness or
in health, they should only want what God
wishes for them. For all that happens to them,
let them give thanks to our Creator.
—The Rule of the Third Order Regular #23,
St. Francis of Assisi |
Most family and friends are specialized caregivers. Our brothers or sisters
might drive us to medical appointments
while our neighbors pick up
milk and bread at the grocery store.
Sometimes nephews or nieces take out
the trash, climb ladders to change lightbulbs
or do light cleaning. Others
might sort out insurance forms, pay
medical bills or call the doctor's office
for clarification on prescriptions or procedures.
Some caregivers check up on
our daily well-being.
Stress and Burnout
According to the familiar hymn, Jesus
said, "Whatsoever you do to the least
of my people, that you do unto me"
(see Matthew 25:40). Offering loving
service to someone who is ill is a profound
component of our Christian
value of service.
Caregiving shows the faithfulness
that love brings. Giving time to help a
sick person offers both the caregiver
and the one receiving the care an
opportunity to think of and be grateful
for the other.
Caregivers, however, are prone to
burnout since they devote themselves
to care for the ill—unpaid and often at
their own expense. Caring for the
chronically ill can bring a change in
family dynamics, can disrupt households
and put a burden on finances.
The family lives of everyone concerned
are changed, and both the caregiver
and the recipient can feel powerlessness,
irritability, isolation and despair.
Resources
Web
www.homecaringadvice.com/toolshed.html This Web page offers tips
about coping with caregiver stress, signs of
burnout and what you can do to help.
www.caregiver.com This site is "for,
about and by caregivers."
Books
The Fearless Caregiver, by Gary Barg.
Caregiver Media Books/Capital Books, Inc.,
Herndon, VA, 2003.
Chicken Soup for the Caregiver's Soul, by
Jack Canfield, Mark Victor Hansen and
LeAnn Thieman, L.P.N. Health Communications,
Inc., Deerfield Beach, FL, 2004. |
Just say, "Thank you very much!" A
simple phone call, a hug or just saying,
"Thanks, I appreciate all you do for
me," goes a long way. A written note,
a flower, some tea or a candy bar given
to a faithful caregiver can be a touching
gift.
Acknowledging the caregiver is a
matter of graciousness and gratitude. It
is healthy for both the ill person who
steps out beyond self-absorption and
the caregiver who is affirmed.
If you have difficulty writing a thank-you
note, or getting a card or flower
for your caregivers, try this: Show your
caregivers this article. They will know
you love them and are grateful.
Thanks, Judy and Whitey, Willie and
Carol, Rosalma and Maria, Sue and
Joanne—and everyone who cares for
me!
Sister Karen Zielinski,
O.S.F., was director of communications
for the Sisters of
St. Francis of Sylvania, Ohio,
from 1991 to 2008. She is
now director of Canticle Studio, for products
which focus on spirituality and health. She
can be contacted at whollyhealthy@
AmericanCatholic.org. |